Is the NHS sharing your data? What you need to know

A number of national media reports and social media posts are claiming that your personal health data will be shared if you don't opt out now. This is clearly worrying, but it is not entirely true.
NHS Data Image

Here's what you need to know:

  • Shared data helps the NHS. It has been used to find the first treatment for coronavirus and for vaccine research.
  • The data that NHS Digital will hold and share is anonymous. It doesn't include your name, address or any identifiable numbers like your NHS Number.
  • There is no deadline for opting out of sharing your data. You can opt out at any time.
  • NHS Digital will never sell your data. There are strict rules about how the NHS can use your data. It's only shared securely and safely for planning, commissioning and research purposes. Your data will never be sold to marketing or insurance companies.

Find out more

What do I need to do?

If you're happy with your confidential patient information being used for research and planning you do not need to do anything.

You can stop your confidential patient information being used for research and planning by opting out either from it being shared with NHS Digital or by opting out from NHS Digital sharing your data. .

Stopping data being shared with NHS Digital

If you do not want your patient data shared with NHS Digital, you can opt out using the button below or return this form to your GP practice. This is called a Type 1 Opt-out with your GP practice. You do this at any time and you can change your mind at any time and withdraw a Type 1 Opt-out.

Stopping NHS Digital sharing your data further

You can opt out of NHS Digital sharing your data by using the button below:

Make your choice

OR:

Phone: 0300 303 5678 – Monday to Friday, 9am to 5pm (excluding bank holidays)

By post or email fill in the opt-out form and email it to enquiries@nhsdigital.nhs.uk 

Alternatively, you can post the form to:
National Data Opt Out, 
Contact Centre
NHS Digital
HM Government
7 and 8 Wellington Place
Leeds